Well today is actually 8/1/12, but I am writing about how I felt yesterday. Yesterday (7/31/12) was a fair day. I felt between 3 and 3.5 most the day. But that is because I sat on my ass with an IV in my arm for close to 6 hours. I didn’t have any real chores to do, and I was in the AC all day, so it made for a good health day. Also when I did get home all I had to do was gather the trash and get it out to the street so that wasn’t health stressful at all. Yes I am still having issues with acute shortness of breath, but even that seems to have ease up a bit. And I was a couch potato last night watching TV. Back to yesterday, it was my IVIG day, it is a once a month treatment to my immune system where I get 400 units of Gammagard. Yesterday though was at the new increased dosage of 500 units. I checked into the infusion center at 822am yesterday, I left the infusion center at 232pm. Yes I spent the entire day there. All I had was a bottle of water and a bag of pretzels. Next month I will be taking my lunch and more than 1 bottle of water. I was smart enough to bring my nook, so I read, I played crash cube, cribbage, and then I read some more. Oh did I tell I played crash cube LOL LOL. Oh now to some serious business. It was proposed to me that I have a medi-port installed because of all the IV fed drugs I get. The picture that was painted was very appealing to me, things like being about to take a shower everyday, and using the pool (while in an IV drug procedure). When proposed I was advised that with a medi-port I could do these things. So I scheduled an appt with the doctor who would be installing the port in my chest. During the conversation he advised me of the potential problems I could have because I am in the HIGH RISK group. He advised me that there were 2 major problems that could come because of the surgery, I have the potential of either a stroke or a hole in my lung, though he did also advise that no one has ever had a stroke while he was doing the surgery and only once about 6 years ago did a lung get punctured. While these scared me greatly, I was almost willing to proceed because of the perceived benefits to me. I have come to find out that the medi-port would be more convenient for the doctors and those giving me the drugs, the fact of the matter is that while it is being used, it is just like having a pic line. I won’t be able to shower or use the pool. So I have decided to not get a medi-port. When the time comes for an extended period of IV durgs, a pic line will be installed. As for today 8/1/12, it is a solid 3.5 day so far. I have been out and done the majority of my chores and I am no worst for wear, and have only 1 thing to do this afternoon, so I expect it to continue to be a good day.
How I feel today 7/31/12