How I feel today 7/31/12

03 Aug

Well today is actually 8/1/12, but I am writing about how I felt yesterday.  Yesterday (7/31/12) was a fair day.  I felt between 3 and 3.5 most the day.  But that is because I sat on my ass with an IV in my arm for close to 6 hours.  I didn’t have any real chores to do, and I was in the AC all day, so it made for a good health day.  Also when I did get home all I had to do was gather the trash and get it out to the street so that wasn’t health stressful at all.  Yes I am still having issues with acute shortness of breath, but even that seems to have ease up a bit.  And I was a couch potato last night watching TV.  Back to yesterday, it was my IVIG day, it is a once a month treatment to my immune system where I get 400 units of Gammagard.  Yesterday though was at the new increased dosage of 500 units. I checked into the infusion center at 822am yesterday, I left the infusion center at 232pm.  Yes I spent the entire day there.  All I had was a bottle of water and a bag of pretzels.  Next month I will be taking my lunch and more than 1 bottle of water.  I was smart enough to bring my nook, so I read, I played crash cube, cribbage, and then I read some more.  Oh did I tell I played crash cube LOL LOL. Oh now to some serious business.  It was proposed to me that I have a medi-port installed because of all the IV fed drugs I get. The picture that was painted was very appealing to me, things like being about to take a shower everyday, and using the pool (while in an IV drug procedure).  When proposed I was advised that with a medi-port I could do these things.  So I scheduled an appt with the doctor who would be installing the port in my chest.  During the conversation he advised me of the potential problems I could have because I am in the HIGH RISK group.  He advised me that there were 2 major problems that could come because of the surgery, I have the potential of either a stroke or a hole in my lung, though he did also advise that no one has ever had a stroke while he was doing the surgery and only once about 6 years ago did a lung get punctured.  While these scared me greatly, I was almost willing to proceed because of the perceived benefits to me.  I have come to find out that the medi-port would be more convenient for the doctors and those giving me the drugs, the fact of the matter is that while it is being used, it is just like having a pic line.  I won’t be able to shower or use the pool. So I have decided to not get a medi-port.  When the time comes for an extended period of IV durgs, a pic line will be installed.  As for today 8/1/12, it is a solid 3.5 day so far.  I have been out and done the majority of my chores and I am no worst for wear, and have only 1 thing to do this afternoon, so I expect it to continue to be a good day.


Posted by on August 3, 2012 in How I feel on a particular day


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5 responses to “How I feel today 7/31/12

  1. Wanda

    August 3, 2012 at 7:45 pm

    I’m glad the last couple of days have been good ones, Bill, and I hope today was too. And yes, you will definitely have to ramp up on snacks and diversions before your next IVIG treatment. It’s a real shame the clinic doesn’t have wireless service–I’m sure you wouldn’t be the only one to enjoy it.

  2. huntmode

    December 8, 2013 at 7:23 pm

    Bill, I’m ignorant on mediport and pic lines – I’m going to store up all my questions in one email, ’cause I may learn about all these by reading through the year’s postings. Why waste your oxygen? Soft smile. That has been my motto for much longer than the COPD diagnosis ~ mostly in response to those who are in the constant repeat mode… smile.

    I believe I’ve caught up to August and am off to do some of my daily life maintenance tasks… grin. HuntMode

    • FlaHam

      December 8, 2013 at 8:15 pm

      Hunt, Just a quick note on Pic Lines and Mediports. I have reached a stage were antibiotics given in pill form generally do not have the impact needed to beat down whatever infection I have (either pneumonia or MRSA). When this 1st started years ago, if I was in the hospital they would start an IV, and leave it there for the duration. But over the years, I have had so many needles in my arms that finding a good vein takes sometimes as many as 6 or 8 sticks to find one that works properly. Now years into being ill, it takes a real pro to find a vein they can use for more than one injection. Here is the Internet definition of Picc line A PICC line is, by definition and per its acronym, a peripherally inserted central catheter. It is long, slender, small, flexible tube that is inserted into a peripheral vein, typically in the upper arm, and advanced until the catheter tip terminates in a large vein in the chest near the heart to obtain intravenous access. It is similar to other central lines as it terminates into a large vessel near the heart. However, unlike other central lines, its point of entry is from the periphery of the body � the extremities. And typically the upper arm is the area of choice. A PICC line provides the best of both worlds concerning venous access. Similar to a standard IV, it is inserted in the arm, and usually in the upper arm under the benefits of ultrasound visualization. Also, PICCs differ from peripheral IV access but similar to central lines in that a PICCs termination point is centrally located in the body allowing for treatment that could not be obtained from standard periphery IV access. In addition, PICC insertions are less invasive, have decreased complication risk associated with them, and remain for a much longer duration than other central or periphery access devices. Using ultrasound technology to visualize a deep, large vessel in the upper arm, the PICC catheter is inserted by a specially trained and certified PICC nurse specialist. Post insertion at the bedside, a chest x-ray is obtained to confirm ideal placement. The entire procedure is done in the patient’s room decreasing discomfort, transportation, and loss of nursing care. of the following: -Prolonged IV antibiotic treatment; -IV access obtainable by less invasive and longer lasting methods; -Multiple accesses obtainable with one access line; -TPN Nutrition; -Chemotherapy;; -IV access related to physiological factors; and -Home or sub-acute discharge for extended treatment. PICCs are frequently used to obtain central venous access for patients in acute care, _home care_ ( and _skilled nursing_ ( care. Since complication risks are less with PICC lines, it is preferred over other forms of central venous catheters. A PICC is not appropriate for all patients. Proper selection to determine the appropriateness of this device is required. The PICC may have single or multiple lumens. This depends on how many intravenous therapies are needed. A PICC line can be used for antibiotics, pain medicine, chemotherapy, nutrition, or for the drawing of blood samples. PICCs can be inserted by radiologists, physician assistants or certified registered nurses. They are inserted using ultrasound technology at the bedside or ultrasound wit fluoroscopy. Chest radiographs are also used to confirm placement of the PICC tip if it was not inserted using fluoroscopy I know this is way more info than you wanted or needed. But I felt like sharing. LOL LOL

      Take care, Bill

      • huntmode

        December 8, 2013 at 9:26 pm

        Oh, thank you, Bill! I’m copying your answer and throwing it into my document of questions, now a Q&A document! If you haven’t thought of it, maybe post this for others in a December 2013 post… Again, thank you, dear man. HuntMode

        • FlaHam

          December 8, 2013 at 9:56 pm

          Hunt, I saved both the Picc info and the mediport info for a potential Dec post Take care, Bill


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