Good Day and Happy Saint Paddy’s Day to you. I hope your well, and have had a good week or so. As for myself I am getting better and better. The shortness of breath (SOB) is still ruling the day, and catches me off guard sometimes when it arrives. By the way, SOB, is that a perfect acronym or what? Conversations with my doctors would lead me to believe that I will have to learn to accept this SOB. But I won’t do that, I figure with some exercise, some weight lost, and my attitude, I will get some of it back, maybe not as much as I want, but I will get some!
One of my constant complaints has been that I never leave the hospital in better shape than when I went in. Yes, the situation that brought me to the hospital had been resolved, but my overall health has diminished. Before this last hospital stay, I had moderate shortness of breath, but now it seems to border on severe. I suspect this is a battle that most of the individuals fight with during the course of the disease. I know several of my friends in my discussion group struggle with SOB, but they are all fighters, and I will learn from them.
Overall I would rate the past 10 days or so as 2.50 to 2.75. I have had a couple of low days, and a couple high days, but no 3.0 or better days. I see improvement, but I feel I have a long long way to go. So compared to my last report, I am doing better.
News from the medical front, my last chest x-ray a week ago Friday showed that my lungs are pneumonia free, which is the good news. The bad news, if you want to be technical, is that the additional tests have shown that the MRSA has a firm hold on me, and that the Pseudomonas which had been a secondary infection has become the primary concern. The Pseudomonas has colonized in my left lung, and this is a carryover from my hospitalization last June. It is highly resistant to most antibiotics, but, as it had, between June 2012 and January 2013 goes dormant or at least semi-dormant. To fight this I have had a new pic line installed and am taking IV medication 3 times daily, this is self-administered. In addition to the IV medicine, I am also using the nebulizer for an additional antibiotic. This is a once a day treatment.
After riding a three-week INR rollercoaster, my INR has stabilized in the 2 to 3 range. This means no more twice a week visits to the doctor’s office for the INR test, but I will miss flirting with the nurses there.
As always your comments, thoughts, suggestions are always welcome. Please take care — Bill