I am impressed with myself. I have gone almost 2 full weeks (as promised) without writing a “How I Feel Today…“post. Unless something dramatic happens (which we don’t want) I think I will try to stay on this schedule.
Since my last post on this subject 03.30.13, I have had my INR checked twice (2.3 and 2.5) and it appears that is once again under control. I have also had 3 appointments with my Infectious Disease office, and I continue to improve. It appears that besides asking me “how am I doing,” their single biggest measurement on my health is what my lab workups say. And apparently they are saying good things. My current white blood count is 10.9 which puts me just a tiny bit outside high normal. As stated by my NP this is a good thing. It means my body, in conjunction with the medicines, is winning the battle against the crap in my lungs. Understand this is a single battle, not the war. But smiling, it is nice to win one from time to time. My doctors (both Pulmonary and Infectious) believe I won’t be getting much of my wind back. If getting the white blood count back to normal is a victory, then not getting my breath back after hospitalization is a lost.
Still addressing the breathing issue, it really is my hope that I gain enough wind back to at least resume my 3 times a week walk on the treadmill. Right now my walks are around the local Publix and Costco as I do some of the necessary shopping. Granted I have to stop often to catch my breath, but I am doing it. Like I said, it my hope that soon I will be walking a couple of miles a week.
The NP and my Doctor will be keeping me on my current drug program (IV infused antibiotics 3 times day and 1 antibiotic nebulized 1 once a day) thru the end of the weekend. I was told to come to the office on Monday April 15 to have the pic line removed. The removal of the pic line my friends, is how I gauge if I am winning or not. Continuing with news from Infectious Disease Office, it appears the list of drugs that my body, in particular my lungs no longer respond to is growing. So as future pulmonary episodes occur the doctors will have fewer weapons to use in the fight. But on the bright side, if I don’t use a particular drug for a period, there is chance that in the future that drug may be available to the doctors.
One of the gauges I have begun using to determine “how I feel” on a given day is my desire to write, to share stories of myself and family. Since my hospitalization, with the exception of weekly How I Feel Today’s, and some bitching about aspects of being in the hospital, I really haven’t felt like
writing. But for those that follow my blog I seemed to have come out of my shell this past week. My writing has picked up significantly, and it has been relatively creative considering the subject matter. This is to say that while I still feel physically weak and not together. My mind seems to be engaging in the things I like.
As always your comments, thoughts, suggestions are always welcome. Please take care — Bill