Good morning folks, I hope you have had a pleasant week, mine was okay. Nothing earth-shaking to report and no real changes in my health (good or bad) occurred this week. A milestone happens on June 17, 2013 (and this probably won’t be the only time I mention it), it will be the 1 year anniversary of this blog, my first post was 249 words long and it was a chore to write. This post will be my 127th post. Now I have a hard time keeping my posts to less than 1200 words.
When I started my blog I had a scale I used to determine how I felt during a given period of time. The scale is based on a range from 1 to 5 and percentage points in between. If I felt like a 1 on my scale that meant I felt like death sucking on a life saver. If I said I felt like a 5 it meant I was walking on clouds I felt so damn good, to the point that golf might be a possibility. At no point this year have I had either a 5 day or a 1 day. But I was close to both more than once. That scale has worked pretty well, but it doesn’t reflect the overall change in my health, it doesn’t reflect, that no matter what I do, I won’t feel as good as I did this time last year.
So after further review I have decided to revise how I apply my scale to me. Given my current health, recent hospitalizations, and all the other factors I use to gauge me, today I feel like a 3, maybe even a touch over a 3. Clearly today’s 3 isn’t the same as last year’s 3, but I am not the same either. I would much rather be glad I feel as well as I can, than dwell on what I can’t change. So for those keeping score 3 is a good day. Not great, not bad, but just an average kinda day. And smiling I will take 3 days everyday given the choice.
The pneumonia that hospitalized me during the early part of May is still resident in my left lung, and will continue to reside there. That will not change so we won’t be spending a lot of future time discussing it. I saw both my lung doctor and the infectious disease doctor this week. My lung Doctor said (smiling) my lungs sounds pretty good for the condition they are in. One day I am going to have to borrow a stethoscope and listen to my lungs on good and bad days just to hear what my doctors hear. For the better part of the last 6 years my lungs have been the central issue to my health and I have never heard what they sound like. Listening to them may give me a better perspective, or at least increase my knowledge of what’s going on in there. My last INR check was 2.6 which is good, and will be checked again next week. Glucose is running a little high, but given all the medicines I am taking that is understandable, and with the exception of my internal medicine doctor, they tell me there isn’t a reason for concern. White blood count is way high still at 16.2, but given that I still have an issue in my lung my body is fighting, this too is understandable. My immunoglobulin’s are all within normal or low normal range, again my doctors seem happy about this. My O2 level has been low all week, random checks have found my O2 to be 90 or less more often than not this week. It has been especially low after exerting myself even at a minimum level. My lung doctor said if this continues we may have to adjust my supplemental to 3 lpm (have been at the 2.5 level for almost 3 years). I take all of this to be good news for me.
For the sake of keeping this positive, and because SOB has become a part of my day-to-day world, you can assume that SOB is a continuing issue. If there is any significant change in it I will report the change. Though I am considering writing a post just about SOB, when it comes on, how long it lasts, what triggers I notice, and the things I do to combat it.
My Lung and Infectious Disease doctors are working together to ensure that I have a good cruise. Schedules are being shifted slightly to allow treatments to take place just prior to departure rather than upon return. Medicines will be prescribed for me to take with me for “just in case” situations. I feel very good about the effort they are putting forth to help. My wife and daughter also are quite appreciative of the efforts.
Well folks I hope you have a pleasant day, thank you for your continued good thoughts and kind words of encouragement. As always your comments welcomed are encouraged – take care, Bill