This week has been a solid 2 based on the scale I have created in my mind and which I have used week to week for the last several months. But my system for evaluating how I feel is changing to reflect the times and I will explain why in just a moment.
Vitals for the week: bp = 116/69, resp 89 (low for week) normally around 100, O2 = 93-96 depending on what I am doing at the moment the O2 is checked, temperature = 97.8 or so, weight = to frigging much but less than the week before, and white blood count 11 (10 days ago almost 17). I will be fitted with a Mediport between next week and the end of the year, which will make life easier, not having to have a pic line installed 3 or 4 times a year.
Last week I spoke to litany of health issues I was fighting including: pneumonia, MRSA, and a yeast infection in my lungs. Concurrently as I was drawing battle lines and fighting against all my ills, my wife was acutely ill, having migraine after migraine, and all the ugly side effects of just existing felt miserable. But the good news is we are both past these problems. On Tuesday, I found out that the pneumonia, and MRSA, as well as, the yeast infection were no longer an issue. The yeast infection totally gone, the MRSA and pneumonia have both gone into remission. Steph has been in a constant upward trend all week, and she truly feels her issues are behind her.
On Tuesday of this week I went to Doc Infectious, feeling like shit on a stick, and fully expecting to continue the antibiotic (IV) treatment for at least 10 more days, maybe as long as 14 more days. That was how not good I felt. In my mind no significant progress had been made, I was coughing less, and while I felt I had made the turn, I was really expecting and mentally prepared for 10 to 14 more days of intense drug therapy. To say I was shocked is an understatement when Doc Infectious stated there were no bugs to fight, and the continued used of the antibiotics would only work against me in the long run. After getting the news I said but Doc I still feel like crap. Is this my new normal? To which Doc Infectious replied yes Bill, this is your new normal. So folks, that is why my “How I Feel” scale is going to change. I have not yet made the mental adjustment, and I may not for a week or so, but it will happen soon. And soon I will be back to having 3 kinda weeks. In retrospect I am not the least bit surprised by the diagnosis of Doc Infectious, or Doc’s statement that I now have a new normal. This past year, I have been hospitalized twice for 28 days, and have had 3 exacerbations which required I have another 62 days or so of IV fed antibiotics and oral medications beyond what is on my normal plate. That bit of information alone is enough to realize that I need to adjust my scale, because my life is being adjusted each day.
I had a good session with Doc Head on Thursday, having a non-judgmental person listening too, and encouraging you to say what is on your mind is extremely helpful, is and probably one on the reason I remain somewhat sane (and I know so will argue my sanity). So I strongly suggest that anyone and everyone can gain something by having a Doc Head in their life’s, even if that person isn’t Doc at all. A good friend, a pastor, preacher, or priest it doesn’t matter as long as they got your back, and won’t drop a dime on you, can do you a world of good. Doc Head checks my blog on a weekly basis looking at “How I Feel” posts. I am sure she does it to get a reflection on my physicalness for the week, so she can gauge what impact that might have on my head.
Early in the week next is full of Doc visits. I see Doc Lungs, Doc Infectious, my monthly IVIG treatment, and I see the surgeon regarding the installation of the Mediport. So I will have plenty of fun stuff to talk about and share with you.
“That’s all Folks!” this wraps up the 2nd November report. Take care, and again thank you for taking the time to explore my post. If you have any questions, please ask away. As always your comments are greatly appreciated. Take care Bill
PS – aren’t you proud of me, I got this out well before the COB deadline, on a Friday. Not bad huh!!