Yesterday (11/17/13) I posted an extremely long rambling post about COPD, and the impacts it had on my life, and I purported that many sufferers of COPD had many of those same feelings, those same issues and those same experiences. I suspect that I am right in those assumptions. But for all the writing I did I left out one of the single most important aspects. There is hope for sufferers of COPD, not during the remaining part of my life but it is coming.
When I was 1st formally diagnosed with COPD 6 years ago, there was very little public acknowledgement of the disease, you never heard about it, and there was nothing really on the Internet regarding the disease. The medicines available were limited, and there weren’t any new ones on the horizon. There was no public outcry for a solution, or for research, no movie star or celebrity had taken up the cause. But that is changing. Over the last 2 years, I have heard COPD discussed on the Today Show, The Morning Show, I think Doc Oz even did a segment. Numerous articles have been printed in major papers and magazines, and COPD has been spotlighted on shows like Ellen, and even NASCAR has had a race with COPD being in the race title. Change is in the wind, and it is positive. You hear about stem cell research now, and of course the rats with COPD tests (how rats got COPD is beyond me). But COPD is on longer the bastard step child of diseases. People are paying attention. Every other year there is a national conference where doctors, sufferers, research people, equipment vendors and drug companies all get together and have seminars, drug companies brag about their new drugs, and vendors show the latest and greatest portable oxygen machines, doctors talk about the strides made in the treatment, and sufferers get together and share their experiences. I was going to go to last years, but I was just recovering from another bout of pneumonia. But it is my hope to go to the next one.
The whole point is that all is not lost. In the future COPD will not be the death sentence it is now. It is finally getting the attention it deserves. Though I don’t believe we have our own movie star who has taken it up as their cause, but with all the public attention COPD has drawn in the last 18 or so months, it can’t be long before we have our own movie star.
COPD requires you to fight it, thru exercise, a good diet, and paying attention to your doctor. And while you might not win the war, you can and will win many a battle. And with each victory comes the smile of a grandchild or other loved one.
Thank you for allowing me to supplement an already extremely long post. For as much as I said yesterday, this needed to be said. The fact there is hope is as important as my or your fight against COPD. If you have any questions, concerns or if you just want to comment, please feel free. Take care, Bill