I am beginning this weeks’ report at 1pm and I know I will have a ton of interruptions between now and when I finish, so I can’t nor will I say this will be complete by COB today. Music will be brought to you today courtesy of Nickelback, truly one of my go to bands. Because of the known numerous breaks I will have today, the music selections and bands will be changing of course I will keep you updated. BTW I have 44 Nickelback songs on my IPOD, so I doubt if I run out.
Last week after I hymned and hulled I gave the week a 2.5. I feel that is still an appropriate rating for this week so for those keeping score this week is a 2.5. There has been no significant forward movement, and rather than just change the scale, I will keep the rating. The coughing has all but stopped with just time a day were it is a major factor and when I cough it is not productive. As ugly and nasty as it sounds the best cough for a person with COPD is a gut retching deep nasty cough that is super productive. Smiling when I cough like that I am bragging not complaining. Last week I complained about barely holding my own. Even with such little progress I am managing to hold my own.
Let get the vitals out-of-the-way for the week ending 03/07/14
INR = 2.6 taken 02/24/14 — next check 3/17/14
O2 level @ 2.5 LPM = 92/93 taken numerous times this week
BP 122/74 = taken 03/05/14
Heart rate = 99 taken 03/05/14
Temp = 97.6 taken 03/05/14
Weight = 272 taken 03/07/14 – that’s 2 lbs less than last week HOORAY
There has been only a slight change in my medicines. I am no longer using Cefepime via IV so the Mediport has been cleaned and is now back in standby mode. -–interruption 1 — Still working Nickelback. LMAO I wonder what the guys in Nickelback think should they hear that one of their biggest fans is a 64 year old fart. Who really listens to and loves the lyrics.
This week I had appointments with both Doc Infectious and Doc Lungs. It seems that whatever bug I have that is currently managing to crap in my lungs is now at bay, at least for the time being. The normal cracklings, gurgling, and other unique noises my lungs make aren’t nearly so bad this week. The extremely shortness of breath is being attributed to the worsening of my COPD, (brought on by the last exacerbation) and this is expected. It is really part of the process of being ill. Do I like it when my doctors concur that the disease is winning, of course not, but folks it is what it is. And again the process mandates this is to be expected. Sidebar note, if you get a chance listen (closely) to Nickelback’s “Kiss it Goodbye.” Additional sidebar, maybe bragging about liking this song in this part of my report was inappropriate, but’s a great song that happens to be playing now.Both Doc Lungs and Doc Infectious are realistic men, their staffs are realistic, but most importantly they have my best interests at heart. We are staying the course they feel is in my best interests. But with any condition or disease you must be prepared for changes in condition and direction. That’s a long way of saying I was expecting the SOB to get worst, and I am somewhat prepared.
So ends the technical aspect of my “How I Feel This Week” report moving now to the word of the week discussion aspect. I have gone thru about 15 Nickelback songs in a row, many I have heard dozens of time, and I am still enjoying it, but as we move into the word or phrase of the week phase of my report, I believe I will listen to Jimi Hendrix for a bit.
The word I have chosen for this week is “Support.” As with last week the definition is being taken from the Merriam-Webster.com Dictionary. I will be providing an edited version of the word, but you can go to the link below to get the “complete” definition.
1 sup·port transitive verb \sə-ˈpȯrt\ : to agree with or approve of (someone or something), to show that you approve of (someone or something) by doing something, to give help or assistance to (someone or something)
Full Definition of SUPPORT— 1: to endure bravely or quietly : 2a (1): to promote the interests or cause of (2): to uphold or defend as valid or right :advocate <supports fair play> (3): to argue or vote for <supported the motion to lower taxes> b (1):assist, help <bombers supported the ground troops> (2): to act with (a star actor) (3): to bid in bridge so as to show support for c: to provide with substantiation :corroborate <support an alibi> 3 a: to pay the costs of :maintain <support a family> b: to provide a basis for the existence or subsistence of <the island could probably support three — A. B. C. Whipple> <support a habit> 4 a: to hold up or serve as a foundation or prop for b: to maintain (a price) at a desired level by purchases or loans; also: to maintain the price of by purchases or loans 5: to keep from fainting, yielding, or losing courage :comfort 6 : to keep (something) going
2 support noun : the act of showing that you believe that someone or something is good or acceptable : approval of someone or something : the act of helping someone by giving love, encouragement, etc. : help that is given in the form of money or other valuable things
Full Definition of SUPPORT 1a: the act or process of supporting: the condition of being supportedb: assistance provided by a company to users of its products <customer support> 2 : one that supports —often used attributively support staff> 3 : sufficient strength in a suit bid by one’s partner in bridge to justify raising the suit.
I got this card in the mail this afternoon, isn’t surprising the timing of things. I was writing about support, and guess what, I got a bucket load. I have no idea who Liam is, but I can’t thank him enough. It proves you never know when or how support will find you.
It is now 730am on the morning of March 8th, so clearly I didn’t make the self-imposed COB deadline, though I did listen to some Hendrix last night. I have been thru my morning meds process, I have nebulized the stuff that makes my beard sticky and glues my eye lashes together, so thru squinty eyes I am working to complete this post. I have chores today, and I must watch the UofL vs UConn basketball game at 2pm EST. I am just saying this may end up a weekend report. Imagine all the extra music you will hear me talk about. To fire my butt up, and to really get my motor running we are starting the day with some AC/DC.
Folks isn’t support a wonderful word. It is far reaching, and has thousands of applications, it can be big or little, it can be a word or a million bucks. Support will allow itself to be what you YOU, need it to be. Support can come from millions of directions, some expected some totally unexpected. But as wonderful as it is, one of the most difficult aspects of support is realizing when YOU need it. And friends don’t be offended with me saying YOU, when we know I really mean ME. But it does also apply to YOU as well.
Support will be one of the key cornerstones on how we progress through our illness. It will come in stages, and you will find it in many places. It will not be a bad thing to knowledge that you need some support. You will see support in many ways; spiritual, physical, that quiet moment, the guiding hand, a smile or look even direction. It will come from people you know and trust, to complete strangers and all points in between. As your disease progresses you will find the smile you get from the nurses aid to be a bit more genuine, their touch a little softer, you’re doctor or team of doctors will be there for you, clearly with your best interest at heart. At your pharmacy, the pharmacist’s smile is a touch warmer and maybe the service a touch faster. The clerk at the grocery store will unload your basket with a genuine smile on their face. Unexpected people will open doors for you. The neighbor will drag your trash bin back to your garage and not even take credit. And this takes place in the beginning, and will grow from there. For the longest of times I have tried to man up and do it all myself, standing my ground refusing any and all support and help. But folks as it gets more difficult you can’t do it all yourself. And as I have done you will find graceful ways to accept the support you get. I also suspect the further the disease progresses the more willing and graceful I will be in accepting both support and help. I write this to suggest that you think about this as well. The folks offering their support and help are doing because they care, it is not being done out of pity. Try to remember that. Yes sometimes it will be too much, but trust me there will be a time when it isn’t.
I have managed go on and on. So with Genesis playing strongly in the background I will bring this to an end. If you have any questions, concerns, comments, or ideas please feel free to ask away. I hope you have a great weekend, and I will be posting again soon. Take care, Bill